4:53pm
Nathaniel was discharged at about noon today. Now we’re all home and mostly settled. Nathaniel will be doing home IVs in addition to the feeding tube and respiratory therapy and oral meds. It’s complicated but we should hopefully be able to manage.
Not that we have any choice. For complicated insurance reasons it’s difficult to hire someone on a useful timeline to come help. We always have the option to pay a not-nurse to do the work (or even more for a home nurse that doesn’t take insurance). Until and unless things get substantially worse we are our own caregivers.
I hope you can set aside an hour each day just for you – more if possible. And if you can get out of the house for that hour – even if it’s just a walk – jealously guard that “me” time – no interruptions.
You deserve it and you need it.
I agree with Aunt Kit!