8:27pm
Around 4pm Nathaniel learned that the rehab hospital was going to take him over to the Hospital of the University of Pennsylvania for testing. The current running theory is that he’s got a respiratory infection but no one has told him yet what the tests have revealed.
They have, however, determined that he’s being transferred back to HUP, so we’re sitting in the ER (all admissions are through the ER) waiting to see how long it takes to get a bed.
I’ll go get his stuff from the rehab hospital tomorrow.
***
11:53pm
Nathaniel is settled in his room. Unless something extra-exciting shows up in his CT scan there won’t be any decisions until rounds tomorrow morning, specifically the rounds by the CF pulmonologist team, even though the room is in Transplant’s territory.
I’m hoping to get my butt out of bed early tomorrow and make rounds. After that I’ll spend some time at the rehab hospital picking up Nathaniel’s things and moving them to the hotel room or to his new room at HUP.
On my way back into the hotel tonight one of the valets said to me “Ma’am you live at this jawn?”
Yeah, yeah I do. And at this point I have no guess when I go home.
So sorry you are going through this🙏🏻🥰
Im so sorry. Let’s hope for something small and simple! 🤞much love! Aunt Elaine