6:07pm
It’s been a busy day! Nathaniel has seen doctors from the transplant team, the ICU team, infectious disease, pulmonology, and nephrology. He’s had two different kinds of ultrasound and a whole bunch of tubes taken out of his body.
The good news is that he’s standing well (if he can get on his feet), he’s breathing better, and he finally peed on his own. (Peeing when you’re running dialysis is a difficult thing to do!)
The “we’re watching this” news is that Nathaniel has a fungal infection near his bile duct and the team is worried it might spread. Thus all the tests, and the removal of the central line, etc.
Nathaniel wants out, so he’s pushing himself. Which is good. I’d rather someone who was fighting to escape all the time than someone lying back and accepting whatever fate brings them. But also escape attempts in the middle of the night are somewhat disruptive to one’s sleep. especially when one is sleeping on the back of a sofa.
Nathaniel’s parents came to visit again today. Tomorrow I’m going home to swap out meds and laundry again. Saturday I start sleeping at the Residence Inn, in a bed that is not a converted sofa.
For those of you considering visiting, be aware the Philadelphia marathon is running this weekend and there will be 15,000 extra people in the area, plus a ton of closed roads. You’re still welcome to come visit but I wouldn’t do it.
9:47pm
Let’s add an EKG and an ophthalmology appointment to the list of activities for the day. I’ve threatened to install a revolving door that generates electricity to the room. I think we could power the whole wing.
Stay strong!🥰