7:03pm
We are starting to get the rhythm of after-hospitalization life. We’re still at the hotel, because it’s a nice hotel and the drive from Pottstown to Philadelphia is not as nice. Nathaniel had an appointment with both a nutritionist and a pharmacist today, and I had an appointment with my counselor and with my ENT.
Tomorrow Nathaniel has blood labs, pulmonary function tests, an appointment with the crew at the CF center, and an appointment with the crew handling outpatient liver transplants. After that, we will pick up some prescriptions and return to the hotel and collapse in a heap. That’ll be our life for a while.