2:48pm
We have done what felt like the impossible: Nathaniel has been discharged from the hospital. He is now at the hotel with the most ridiculously large lineup of things that have to be done each day that I think I’ve ever seen and I say that as the 25-year wife of a CF patient. Whoo what an adventure.
But we’re here. Nobody’s in a hospital bed. The nurses have left for the day. We’ve got real (hotel) cable, can order whatever we want to eat, and can take hot showers for as long as we want.
Now, maybe if we’re lucky, we can pack up the drug boxes and then take a nap.
***
4:34pm
It took 2 hours and a phone call to get the meds organized and that’s just the pills, not the inhalation treatments, but we got this far.
good grief.
thank you lord for adderall, which allowed me to concentrate long enough to actually get that done.
What a great way to start the new year!! So happy you’re seeing progress and are in a more comfortable state.
Have you ever considered writing a diary-style book of your experience?
So glad to hear of your progress! I’ll keep sending up those 🙏🏻🙏🏻🥰
NATHANIEL, I KNOW THAT YOU CAN DO
THIS! TAKE ONE THING AT A TIME, CONCENTRATE ON JUST IT, NOTHING
MORE, WHEN IT IS DONE, MOVE TO
THE NEXT, CONTINUE ON UNTIL
COMPLETE.
NOTE: IF NEEDED TAKE A BREATHER
BETWEEN EACH NEED TO DO
SELF CARE ITEM
ITEM. LOVE ❤️ MOM