9:25pm
A rough day. The renal team decided that kidney improvements aren’t happening fast enough, so instead of the docs removing the line in Nathaniel’s neck, they decided he’s going back on dialysis today or tomorrow. The nutrition team decided Nathaniel has to eat 1700 calories a day to be able to have the feeding tube (when the transplant team had told him the number was only 900 calories).
The speech therapy team did clear him to eat and swallow any food he’d like, which is a plus, but nothing tastes good still, which is a minus. And while I was busy all day with a family trip, he did get visits from Matt G and Emilia, two close friends whose company he very much enjoys.
Not a great day, but not a total loss either.