5:03pm
Ok so if we all think really hard that after this colonoscopy Nathaniel will be deemed healthy enough to go home then I might be able to spring him Saturday night.
It’s either that or they do the transplant evaluation with him inpatient and I suspect that won’t go as well
***
10:14pm
Day 26: Nat didn’t get his colonoscopy today because his discharge wasn’t clear enough to indicate that the colonoscopy would be successful and there is no point in having an unsuccessful colonoscopy.
To say Nat was frustrated would be a significant understatement but we did reach a point of agreement that since it has to be done for the liver transplant evaluation anyway, pushing through until we’re sure he’ll have a successful colonoscopy is better than stopping and having to do the whole thing over again in a few weeks.
Meanwhile his liver numbers are…. Not necessarily rising but also not coming down the way they should. There is mention of doing the transplant evaluation inpatient if the docs don’t think he’s healthy enough to go home. I’ve decided not to think about that one way or the other until we get past the colonoscopy.
So it’s 10pm and between now and midnight Nathaniel will consume another half gallon of golytely (making it something like 3 gallons in 3 days) and then at midnight go NPO (no food or drink) with a decision in the morning on whether he’s getting the colonoscopy tomorrow.
Nobody has told me what happens if he’s still not clear tomorrow so let’s just hope he is. Especially since he was really mad about it today — understandably so — and will be even madder tomorrow.
(For the record I told both the doctors and Nathaniel that there was no way he’d be clear in two days based on how things had gone the previous colonoscopy prep 4 years ago, and so did his CF doctor, and neither of us smirked about it today. Sometimes all you can say is “well, here we are.”)
I don’t normally go to sleep this early especially after a big meal (a friend took me out for Mexican! I ate cactus! It was good!) but it looks like my migraine is trying to make a comeback so I am off to take a hot shower and then go to bed.