1:32am
Me, thinking: this nurse is amazing, and so skilled!Me: makes a firefly referenceNurse: I’ve never seen firefly. It was canceled before I was bornMe, in my head again: ok look, you little shit…
***
6:32am
6am and I’m up watching the medical team try to draw an ammonia blood test from an artery and this is not the party to wake up to
***
10:44am
Ah, the Lenovo migrations have begun. Eight or nine sets or computers just walked by with doctors in matching outfits. Winter must be almost upon us
***
12:55pm
I talked to the docs during rounds. Nat’s lack-of-thyroid has gone bonkers so some of the current shenanigans are due to that. They’re consulting with his thyroid docs, his lung docs, his liver docs, and his GI docs to figure out which meds go up and which meds come down.The docs still don’t think he’s in an emergency oh-god-get-here state and if he hits that I will definitely let you know. In the meantime I’m figuring out who wants to come visit and when.
***
1:41pm
I am now at the stage where it makes sense to start telling people at least a high level of what’s going on. Reached out to his parents last night and to his cousin who lives nearby today.
I had always heard that the ICU was the most peaceful part of the hospital and I believe it. We’re getting way fewer interruptions here and when someone does come in, they’re doing three or four things so that they’re not going in and out a dozen times. The staff is amazeballs and it’s the first time that a doctor has straight up invited me to participate in rounds almost as if i was a member of the staff. It sounds weird to say but I feel honored to be able to participate in his care like that
How I’m explaining this mess to other people:
This all started with a liver infection — they think that they’ve got the actual infection cleared up but for whatever reason his body isn’t bouncing back the way they’d hoped.
***
8:54pm
He’s asleep most of the time and when he’s not asleep he’s so tired he’s keeping his eyes closed anyway. He’s currently doing respiratory therapy while also being fed through the nasal tube and is quite possibly asleep — which is probably more than I’ve accomplished all day. I don’t think he’s particularly happy about all the tubes and IVs and such but I’m also not confident he knows what they’re all for.
As for me, I’m trying to make sure that all the doctors understand each others’ timelines and such so that nobody gets crossed up. And I’m trying to get all my email and our bills and things done. And I’m very tired and miss the dogs, but this is where I belong right now.