Category: Liver Transplant Adventures

8:45am

Nat spiked a fever overnight so they moved him to a different floor and ran some antibiotics. They just called me to let me know — he’s apparently agitated and confused (delirious) so they want me to come in and calm him down so they can try to tell if it’s the autism / frustration from being confused or if it’s a symptom of the liver trying to take another dive.

Anyway dogs must be fed and I must be dressed first — shower will have to wait I guess — and everything else will follow from there.

***

11:17pm

Well. He’s got delusions all right. And some day I might share them but right now I’ll just say that I never expected him to believe that I am an imposter and not his real wife. It was a very VERY hard day.

In the meantime his belly pain has mostly gone away but his blood tests and similar items are not at all what they should be. They’re going to do an ERCP tomorrow and see what’s going on.

Thank you Sarah for picking me up when N insisted I had to go to HUP in the transport ambulance or he’s be disappeared, and that I had to come home with a friend and not be around strangers who might be “them”.

Still working the waiting game. No transfer so far. His body’s doing new and interesting things like messing with his lactic acid levels so that’s fun. (They’re back under control now but whee! more stuff to read up on!) Meanwhile my giant order of bakers racks and bins from Amazon has arrived so my front porch is filled with boxes.

Nathaniel is currently admitted at the local hospital (Pottstown) because he was too sick last night for me to get him straight down to HUP.

There’s something wrong with his liver that is causing excruciating pain but this place isn’t equipped to handle it so we’re keeping him comfortable in Pottstown until they can transfer him to Hospital of the University of Pennsylvania, which is who handles most of his stuff.

I am not having a good time.

The dogs are at home and crated, a bit annoyed about it but at least here they have all their blankets, etc. which they wouldn’t have at Petsmart.